I just wanted to say, it's been a season. The holidays, the family, mood swings, unfamiliar events and situations. It's been a season that I have mentioned before. The one you feel like you know nothing. The times you feel like you are taking 4 steps forward only to take 5 steps back. You pull out all your tools in the toolbox to help your child cope with it all, but nothing seems to work. The sessions at therapy become difficult and seems to cause more harm then good. The world around you continues not to "get" the realness of what daily life is like.
It knocks the wind out of you. It makes you isolate, hyper focus, retreat so you can survive. During this time, communication has been limited. No Christmas cards were sent out, gifts were simple, days have been spent creating ways to keep him going and engaged to lessen the stress of the onslaught of multiple illness related symptoms.
Although the holidays, change of routine, schedule, etc is about to be over, then there is the adjustment of losing the big brother back to college. This is always difficult. There is also new symptoms which are being monitored. Honestly, my heart is saying, "Really"
So, here's the reality, I told you I am sharing the good, the bad, and the ugly. I honestly don't considered any of it literally ugly, for I have a God, a personally involved real power, who walks us through, both me, my husband and my son and other children. He holds us, carries us when necessary, and even though it might feel ugly, with HIS perspective, it's never really is.
We are blessed. God has chosen us. All of our children are precious gifts with uniqueness that will and do affect this world for Him.
Thanks for stopping by,
I will attempt to harvest communication to continue to encourage those walking a similar journey.
Lynne
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